Everyone gives for their own reasons – compassion, anger, or sometimes just the tax deduction. But some people have personal experiences that change them forever – and compel them to fight for a cause they truly believe in.

Brett Kopelan is the Executive Director of Debra, a charity that funds research for a terrible disease called Epidermolysis Bullosa (EB for short). Debra also runs programs that help families whose children are afflicted with the disease. Brett has an M.A. in Child Psychology from Columbia University and a daughter with ED. His personal experience with the disease inspired him to make it his life’s work to combat the disorder and support families like his own.